|Related to/Also known as||
|Symptoms of Chiari malformation||
Syringomyelia is a disorder affecting the nervous system, where fluid-filled cavities develop inside the spinal cord. A variety of conditions lead to the formation of syringomyelia cavities. The most common factor is obstruction to the normal flow of CSF (cerebrospinal fluid within the spinal cord). Possible causes include Hindbrain Hernia, also referred to as Chiari Malformation, and spinal cord injury.
Symptoms vary, ranging from neck and arm pain, through to fairly severe disability, with muscle weakness and paralysis.
|Useful national contacts||
Ann Conroy Trust
Chiari Malformation Group: A space for you (Facebook group of the Brain & Spine Foundation)
|Children & young people||
Has your child been diagnosed with Chiari? (Conquer Chiari, U.S. charity)
Chiari I Malformation (For Parents) (KidsHealth)
|News and events|
Coronavirus - information for people with neurological problems (Brain & Spine Foundation)
Chiari malformation (Brain & Spine Foundation booklet)
Chiari malformation and syringomyelia (The Walton Centre)
Arnold-Chiari malformation and driving (Gov.uk website)
Chiari Malformation (NHS Choices)
Syringomyelia Fact Sheet (U.S. National Institute of Neurological Disorders and Stroke)
Syringomyelia (Contact, charity for families with disabled children)
Chiari malformations (Brain & Spine Foundation)
Chiari malformation (Medline Plus website)
Chiari Malformation Patient Information (The Walton Centre NHS Trust)
Living with a condition (The Brain Charity)
" Chiari & Syringomyelia: A handbook for patients and their families", American Syringomyelia & Chiari Alliance Project (ASAP).
The library at The Brain Charity has a range of resources on Chiari Malformation and on a wide range of disability-related issues.
This includes the booklet "Jessica's Journey: One family's experience of chiari malformation in a child" by Kirsty Leigh.