Name Dementia
Related to/Also known as  
Symptoms of Dementia

Dementia is a term used to describe various different brain disorders, that have in common a loss of brain function that is usually progressive and eventually severe. The most common type of dementia is Alzheimer's Disease.

Symptoms of dementia include loss of memory, confusion and problems with speech.

• The British Deaf Association has information in BSL about Dementia.

Types There are over 100 different types of dementia. In addition to Alzheimer's Disease, Vascular Dementia, and Dementia With Lewy Bodies are the most common. For more information see the Alzheimer's SocietyLink opens in new window website
Useful national contacts

Dementia UK
Provides mental health nurses specialising in dementia care, called Admiral Nurses.
Link opens in new window www.dementiauk.org
Tel. 020 7697 4160

Admiral Nurses
Link opens in new window www.dementiauk.org/what-we-do/admiral-nurses

Young Dementia UK
Link opens in new window www.youngdementiauk.org


Lewy Body Society
Link opens in new window http://lewybody.org
Tel. 0131 473 2385


Alzheimer's Society (covers England, Wales, N. Ireland)
Link opens in new window www.alzheimers.org.uk
Helpline: 0845 300 0336
Alzheimer's Society: Carer Information and Support Programme (CrISP)
Link opens in new window https://tinyurl.com/y89h96xa


Alzheimer Scotland (covers Scotland)
Link opens in new window www.alzscot.org
Helpline: 0808 808 3000


Huntingdon's Disease Association
Link opens in new window www.hda.org.uk
Tel. 0151 331 5444 


Parkinson's UK
Link opens in new window www.parkinsons.org.uk
Tel: 0808 800 0303


Stroke Association
Link opens in new window www.stroke.org.uk
Tel. 0303 3033 100

Children & young people 

Explaining dementia to children and young people (Alzheimer's Society)
Link opens in new window https://tinyurl.com/y4bcceg4

Resources for Children and Young People (Dementia UK)
Link opens in new window www.dementiauk.org/children-and-young-people

Online resources

Effect of coronavirus on people living with dementia (The Brain Charity)

Coronavirus: Support for a person with dementia living alone (Alzheimer's Society)
Link opens in new window www.alzheimers.org.uk/get-support/coronavirus-support-person-dementia-living-alone#content-start

Coronavirus: Information for people affected by dementia (Alzheimer's Society)
Link opens in new window Coronavirus: Information for people affected by dementia

Alzheimer's Society - The Dementia Guide (YouTube)
Link opens in new window http://youtu.be/RLBuygIcttU

Making your home dementia friendly (Alzheimer's Society)
Link opens in new window https://tinyurl.com/yajevnxq

Link opens in new window Your unforgettable friend: a dementia-friendly activity booklet brought to you by Puzzler and The People’s Friend

 Living with a condition (The Brain Charity)

News and events

Our resources

Can I tell you about dementia?The library at The Brain Charity has a range of resources on Dementia and on a wide range of disability-related issues.

Visit our library to read Can I tell you about dementia? A guide for families, friends and carers by J. Welton and J. Telford. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name  Down's Syndrome
Related to/Also known as  Down Syndrome
Symptoms of Down's Syndrome
"Down's syndrome, also known as Down syndrome, is a genetic condition that typically causes some level of learning disability and characteristic physical features."
Source: NHS Choices
Link opens in new window https://tinyurl.com/cy8q7ad
Useful national contacts

Down's Syndrome Association
Helpline: 0333 1212 300
Link opens in new window www.downs-syndrome.org.uk
Find your local support group:
Link opens in new window https://tinyurl.com/yahn8r42


Down's Syndrome Scotland
Phone: 0131 442 8840
Link opens in new window www.dsscotland.org.uk

Down's Heart Group
Phone: 0300 102 1644
Link opens in new window www.dhg.org.uk
Mencap
charity for people with a learning disability
Helpline 0808 808 1111
Link opens in new window www.mencap.org.uk
Find your local support group:
Link opens in new window www.mencap.org.uk/search/groups
Children & young people New Parent Pack (Down's Syndrome Association)
Link opens in new window https://tinyurl.com/y8t2a4bn
News and events  
Online resources

Link opens in new window Easy-Read guide to Coronavirus from Mencap

Coronavirus (COVID-19) (Down's Syndrome Association)
Link opens in new window www.downs-syndrome.org.uk/coronavirus-covid-19

Link opens in new window COVID-19: Supporting autistic people and people with learning disabilities (Social Care Institute for Excellence)

Down's syndrome (NHS Choices)
Link opens in new window https://tinyurl.com/cy8q7ad


Down syndrome (Contact, charity for families with disabled children)
Link opens in new window https://tinyurl.com/v8jn7ou
Why the abortion law should be changed to prevent the terminations of foetuses with non-fatal disabilities after the 24th week (BBC, February 2020)
Link opens in new window https://tinyurl.com/ur6krnp

 Living with a condition (The Brain Charity)

Our resources

The library at the Brain Charity has a range of resources on Down's Syndrome and on a wide range of disability related issues.

This includes information on Down's and epilepsy, and on Down's and dementia.

Name  Dysautonomia
Related to/Also known as
  • Riley-Day syndrome
  • HSAN Type III
Symptoms of Dysautonomia

"Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous System. The Autonomic Nervous System controls the "automatic" functions of the body that we do not consciously think about, such as heart rate, blood pressure, digestion, dilation and constriction of the pupils of the eye, kidney function, and temperature control.

"Dysautonomia can also occur secondary to other medical conditions, such as diabetes, multiple sclerosis, rheumatoid arthritis, celiac [coeliac], Sjogren's syndrome, lupus, and Parkinson's."

Source: Dysautonomia International
www.dysautonomiainternational.org

Types Includes:
  • Diabetic Autonomic Neuropathy (DAN)
  • Familial dysautonomia
  • Generalized dysautonomia
  • Multiple System Atrophy
  • Postural tachycardia syndrome (PoTS)
Useful national contacts

Jnetics (formally Jewish Genetic Disorders UK)
Link opens in new window www.jnetics.org
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

UK Potsies
Link opens in new window www.ukpotsies.org.uk

Dysautonomia International
Link opens in new window www.dysautonomiainternational.org

Childen & young people

Living a Life With Dysautonomia in Children (Dysautonomia POTS Syndrome website)
Link opens in new window https://tinyurl.com/y3ua6jps

Brain injury - Dysautonomia (Kids Health Info, Royal Children's Hospital Melbourne)
Link opens in new window https://tinyurl.com/y4rrvdul

News and events "Camilla sees benefits of medical alert dogs on charity visit" (Wolverhampton Express and Star, February 20, 2019)
Link opens in new window https://tinyurl.com/y5h6su29
Online resources

Coronavirus & Dysautonomia (Dysautonomia International)
Link opens in new window www.dysautonomiainternational.org/page.php?ID=227

Coronavirus and diabetes (Diabetes UK)
Link opens in new window www.diabetes.org.uk/about_us/news/coronavirus?utm_source=google%2C%20covid-19&utm_medium=Banner&utm_campaign=banner_covid-19&utm_content=banner_link

Familial Dysautonomia (Contact, charity for familiies with disabled children)
Link opens in new window https://tinyurl.com/sgy9sbh

Autonomic Neuropathy (Diabetes.co.uk)
Link opens in new window http://tinyurl.com/y4hy3g4k

Postural tachycardia syndrome (PoTS) (NHS website)
Link opens in new window https://tinyurl.com/ycxju2b9

Dysautonomia Information Page (U.S. National Institute of Neurological Disorders and Stroke)
Link opens in new window http://tinyurl.com/y499zwts

Dysautonomia, Familial (U.S. National Organizarion for Rare Disorders)
Link opens in new window http://tinyurl.com/yyuajgvm

 Living with a condition (The Brain Charity)

Our resources

The library at the Brain Charity has a range of resources on Dysautonomia and on a wide range of disability-related issues.

Name  Dyscalculia
Related to/Also known as 
Symptoms of Dyscalculia
"Dyscalculia is a specific learning difference, which affects the ability to acquire arithmetical skills and an intuitive grasp of numbers"

Source: Loughborough University Link opens in new window https://tinyurl.com/y9rrv6cb

"Developmental Dyscalculia (DD) is a specific learning disorder that is characterised by impairments in learning basic arithmetic facts, processing numerical magnitude and performing accurate and fluent calculations. these difficulties must be quantifiably below what is expected for an individual’s chronological age, and [is not] caused by poor educational or daily activities or by intellectual impairments"

Source: British Dyslexia Association  Link opens in new window https://tinyurl.com/y8qobbjo

Types
  • Developmental Dyscalculia:  a specific learning disability (SpLD)
  • Acalculia:  as a result of brain injury or stroke, a person may no longer be able to do even basic maths
Useful national contacts

The British Dyslexia Association
Tel. 0333 405 4567.
Opening times: 10 a.m. – 12.30 and 1 p.m. - 4 p.m. Mondays to Fridays. Closed Wednesday afternoons
Link opens in new window www.bdadyslexia.org.uk

Scope
Helpline: 0808 800 3333
Link opens in new window www.scope.org.uk
Find your local support services:
Link opens in new window www.scope.org.uk/Support/services-directory

Children & young people What is Dyscalculia? Why Some Kids Struggle with Maths While Doing Well at Other Subjects? (Centre for Neuroscience in Education)
Link opens in new window https://tinyurl.com/yzsm27am
Online resources

The Dyscalculia Information Centre
Link opens in new window www.dyscalculia.me.uk

What is Dyscalculia? (East Midlands Dyslexia Association)
Link opens in new window https://tinyurl.com/yaz566nn

Dyscalculia (Contact, charity for families with disabled children)
Link opens in new window https://tinyurl.com/tllvrqj

What is Dyscalculia? (Dyslexia Association)
Link opens in new window https://tinyurl.com/yyqojnlf

Dyscalculia (Judy Hornigold)
Link opens in new window http://judyhornigold.co.uk/dyscalculia.html

 Living with a condition (The Brain Charity)

News and events  
Our resources

The library at the Brain Charity has a wide range of resources on disability-related issues.

Name  Dyslexia
Related to/Also known as  
Symptoms of Dyslexia
Dyslexia is a specific kind of learning difficulty, where a child of normal intelligence has persistent and significant problems with reading, writing and spelling, and sometimes with arithmetic and musical notation.
Types  
Useful national contacts The British Dyslexia Association
Tel. 0333 405 4567.
Opening times: 10 a.m. – 12.30 and 1 p.m. - 4 p.m. Mondays to Fridays. Closed Wednesday afternoons
Link opens in new window www.bdadyslexia.org.uk
Dyslexia Action
Tel. 01784 222300
Link opens in new window www.dyslexiaaction.org.uk
Dyslexia Foundation
Tel. 0151 709 0545
Link opens in new window https://dyslexiafoundation.org
Dyslexia-SplD Trust
Link opens in new window www.thedyslexia-spldtrust.org.uk
Children & young people

My child's education (British Dyslexia Association)
Link opens in new window https://tinyurl.com/y6nq89zf

Online resources

Dyslexia (Contact, charity for families with disabled children)
Link opens in new window https://tinyurl.com/vtkzj

Dyslexia - Symptoms (NHS website)
Link opens in new window https://tinyurl.com/zwv8smq

Dyslexia Guide (Hampstead & Frognal Tutors Ltd)
with resources including helpful strategies, and tests, plus details of apps and the latest technology to help you to better manage reading and writing
Link opens in new window https://tinyurl.com/y8fzg7je

How to support a pupil with dyslexia (Engage Education)
Link opens in new window https://tinyurl.com/qv8zk52

 Living with a condition (The Brain Charity)

News and events  
Our resources

Can I tell you about dementia? The library at The Brain Charity has a range of resources on Dyslexia and on a wide range of disability-related issues.

Visit our library to read Can I tell you about Dyslexia? A guide for friends, family and professionals by Alan M. Hultquist. Or look for this book in your local library.

Name Dyspraxia
Related to/Also known as
  • Developmental Co-ordination Disorder (D.C.D.)
  • Motor Learning Difficulties
  • Perceptuo-Motor Dysfunction
  • Apraxia
Symptoms of Dyspraxia
Dyspraxia is a developmental disorder of organisation and planning of physical movement. Developmental dyspraxia (see below) affects co-ordination, spatial awareness, perception, language and short-term memory.
Types
  • Developmental dyspraxia is when someone is born with dyspraxia.
  • Acquired dyspraxia can be caused by a stroke or head injury.
Useful national contacts The Dyspraxia Foundation
Tel. 01462 454986, 10am-1pm, Mon-Friday
Link opens in new window www.dyspraxiafoundation.org.uk
Children & young people Dyspraxia in children (Dyspraxia Foundation)
Link opens in new window https://tinyurl.com/yxnyl2yp
Developmental co-ordination disorder in children ('Patient' website)
Link opens in new window https://tinyurl.com/yyp9w8dd
Children with verbal dyspraxia (The Communication Trust)
Link opens in new window https://tinyurl.com/y62m5ovb
Online resources

Neurodiversity and Co-occurring differences: Dyspraxia (DCD) (British Dyslexia Associarton)
Link opens in new window https://tinyurl.com/yxnczlp2

Dyspraxia (developmental co-ordination disorder) in adults (NHS website)
Link opens in new window https://tinyurl.com/y43dq8c3

 Living with a condition (The Brain Charity)

News and events

'How Doctor Who tackles dyspraxia in series 11' (Radio Times, October 2018)
Link opens in new window https://tinyurl.com/ybmgdcvz

Our resources

can I tell you about Dyspraxia? The library at The Brain Charity has a range of resources on Dyspraxia and on a wide range of disability-related issues.

Visit our library to read Can I tell you about Dyspraxia? A guide for friends, family and professionals, by Maureen Boon. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name  Dystonia
Related to/Also known as  
Symptoms of Dystonia
Dystonia is a disorder which causes muscles in the body to contract and spasm involuntarily. Spasms may affect one part of the body or many parts simultaneously and can be very painful.
Types

The Dystonias can be defined in terms of which body parts are involved.

  • Focal - affects one part
  • Segmental - 2 or more adjacent body parts
  • Multifocal - 2 or more non-adjacent parts
  • Generalised

Primary focal dystonia are the most common including:

  • Cervical dystonia (or spasmodic torticollis) affects the neck muscles.
  • Blepharospasm affects the muscles of the eyelids.
  • Hand dystonia/writer's cramp affects the hand and finger muscles
  • Laryngeal dystonia (or spasmodic dysphonia) affects the vocal chords.
  • Oromandibular dystonia affects the muscles in the jaw, mouth and tongue.
Useful national contacts The Dystonia Society
Helpline: 0845 458 6322
Link opens in new window www.dystonia.org.uk
Find your local support group:
https://tinyurl.com/y2ga7azz
• The Liverpool & Merseyside Support Group meets at The Brain Charity
Children & young people Children and dystonia (The Dystonia Society)
Link opens in new window https://www.dystonia.org.uk/children-and-dystonia
Online resources

Coronavirus and Dystonia (The Dystonia Society)
Link opens in new window www.dystonia.org.uk/news/coronavirus-dystonia

Dystonia (NHS website)
Link opens in new window www.nhs.uk/conditions/dystonia


Dystonia and Parkinson's disease (Dystonia Society)
Link opens in new window https://tinyurl.com/yyo2pot8

 

 Living with a condition (The Brain Charity)

News and events

Sign Joanne's petition: Dystonia needs to be recognised by all medical professions & occupational therapists
Link opens in new window https://tinyurl.com/y9y6d6pv

Our resources

Medikidz Explain Dystonia ManagementThe library at The Brain Charity has a range of resources on Dystonia and on a wide range of disability-related issues.

This includes the book for children and young people Medikidz Explain Dystonia Management.