Name  Tinnitus
Related to/Also known as 

 

Symptoms of Tinnitus

"Tinnitus is often described as a ringing in the ears. It also can sound like roaring, clicking, hissing, or buzzing. It may be soft or loud, high pitched or low pitched. You might hear it in either one or both ears."

Source: Link opens in new window Medline Plus (U.S. National Library of Medicine)

Useful national contacts British Tinnitus Association
Link opens in new window www.tinnitus.org.uk
Find your nearest support group:
www.tinnitus.org.uk/find-a-support-group

Action On Hearing Loss
Link opens in new window www.actiononhearingloss.org.uk
Children & young people Information leaflets for children (British Tinnitus Association)
Link opens in new window www.tinnitus.org.uk/support-for-children
Online resources

Social distancing and managing tinnitus (British Tinnitus Association)
www.tinnitus.org.uk/managing-tinnitus-in-social-isolation

Tinnitus (NHS Choices)
Link opens in new window https://tinyurl.com/lh8ue4


Tinnitus (Contact, charity for people with disabled children)
Link opens in new window https://tinyurl.com/vgbuxdp

 

 Living with a condition (The Brain Charity)

News and events  
Our resources

The library at The Brain Charity has a range of resources on Tinnitus and on a wide range of disability related issues.

Name Tourette Syndrome
Related to/Also known as Tourette's syndrome
Symptoms of Tourette Syndrome
Tourette Syndrome is a neurological disorder characterised by multiple tics, which are sudden, repetitive involuntary movements and sounds. The condition varies greatly in its severity. Children may also have other behavioural problems.
Types  
Useful national contacts Tourettes Action
Link opens in new window www.tourettes-action.org.uk
Helpline: 0330 777 8427
Find your nearest support group:
Link opens in new window https://tinyurl.com/y7rfbss7
Children & young people Children & young people (Tourettes Action)
Information related to children and young people who have Tourette Syndrome.
Link opens in new window https://tinyurl.com/y3g4es53
Online resources Tourette's Syndrome (NHS Choices)
Link opens in new window https://tinyurl.com/pjswg3p
Tourette's Syndrome (TS) (NHS Choices video)
A neurologist talks about Tourette's syndrome
Link opens in new window https://tinyurl.com/y7lqq97r


How Tourette's Syndrome affects learning (About Learning Disabilities)
Link opens in new window https://tinyurl.com/y8aw7ufll

Touretteshero (raising awareness and dealing with challenges)
Link opens in new window www.touretteshero.com


The pain of Tourette's: 'I'm always covered in bruises' (BBC, January 2019)
Link opens in new windowLink opens in new window https://tinyurl.com/ycacp82s

 

 Living with a condition (The Brain Charity)

News and events  
Our resources

Can I Tell You About Tourette Syndrome? A guide for friends, family and professionals The library at The Brain Charity has a range of resources on Tourette Syndrome and on a wide range of disability-related issues.

Visit our library to read Can I Tell You About Tourette Syndrome? A guide for friends, family and professionals by M. Leicester, T. Phillips-Smith and J. Collier. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

 

Name Transverse Myelitis (TM)
Related to/Also known as  
Symptoms of Transverse Myelitis
Transverse Myelitis is a rare neurological disorder caused by inflammation of the spinal cord across one level of the cord. The main symptoms of the disease are reduced muscle strength and altered sensation below the affected area.
Types  
Useful national contacts Transverse Myelitis Society
Link opens in new window www.myelitis.org.uk
Find your nearest support group:
Link opens in new window http://supportgroups.myelitis.org.uk

Brain and Spine Foundation
Link opens in new window www.brainandspine.org.uk
Helpline: 0808 808 1000

Children & young people When your child has TM (Transverse Myelitis Society)
Link opens in new window www.myelitis.org.uk/parent.html
News and events June 9th is Transverse Myelitis Awareness Day
Link opens in new window www.myelitis.org.uk/tm-awareness-day.html
Online resources

Link opens in new window COVID-19 and Rare Neuroimmune Disorders (Siegel Rare Neuroimmune Association)

Rare Disease UK (RDUK) is the national alliance for people in the UK with rare diseases
Link opens in new window www.raredisease.org.uk


RareShare is a unique social forum, building communities for patients, families, and healthcare professionals affected by rare disorders.
Link opens in new window www.rareshare.org

 

 Living with a condition (The Brain Charity)

Our resources

Transverse Myelitis The library at The Brain Charity has a range of resources on Transverse Myelitis and on a wide range of disability-related issues.

This includes the Brain & Spine Foundation's booklet Transverse myelitis.

Name  Trigeminal Neuralgia (TN)
Related to/Also known as   Fothergill's Disease
Symptoms of Trigeminal Neuralgia
Trigeminal Neuralgia is an extremely severe facial pain, which tends to come and go unpredictably in sudden shock-like attacks. The pain is along the pathway of the trigeminal nerve, typically the upper or lower jaw or the cheek, and is usually confined to one side of the face.
Useful national contacts

Trigeminal Neuralgia Association UK
PO Box 234
Oxted
Surrey RH8 8BE
Phone: 01883 370214
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Link opens in new window www.tna.org.uk

Children & young people Children and young people with TN (Trigeminal Neuralgia Association UK)
Link opens in new window https://tinyurl.com/sk3ugyc
Online resources

Advice re. Coronavirus (Trigeminal Neuralgia Association UK
Link opens in new window www.tna.org.uk/wp-content/uploads/2020/04/Advice-re-Coronavirus-1.pdf

Trigeminal neuralgia (NHS Choices)
Link opens in new window https://tinyurl.com/y8r83hws

Trigeminal neuralgia (MS Trust)
Link opens in new window www.mstrust.org.uk/a-z/trigeminal-neuralgia

Trigeminal Neuralgia (NORD, U.S. National Organization for Rare Disorders)
Includes details of TNI andTN2, 'classical' and 'atypical' Trigeminal Neuralgia
Link opens in new window https://tinyurl.com/y28z9njm

 

 Living with a condition (The Brain Charity)

Our resources Trigeminal Neuralgia: An overview

The library at the Brain Charity has a range of resources on Trigeminal Neuralgia and on a wide range of disability related issues.

Visit our library to read our copy of the Trigeminal Neuralgia Association's booklet "Trigeminal Neuralgia: An overview".

Name Tuberous Sclerosis (TSC)
Related to/Also known as Tuberous Sclerosis Complex

Bourneville disease

Symptoms of Tuberous Sclerosis
Tuberous Sclerosis is a complex multi-system disorder, which produces tuber-like growths on the brain. These calcify with age, and can also be found on other organs including the heart, skin and kidneys. It affects people in many different ways and with varying severity.
Types  
Useful national contacts Tuberous Sclerosis Association
P.O. Box 8001
Derby DE1 0YA
Link opens in new window www.tuberous-sclerosis.org
Tel: 01332 290734
Children & young people Tuberous Sclerosis (for Parents) (KidsHealth)
Link opens in new window https://tinyurl.com/ujs5gyb
Online resources Tuberous Sclerosis (NHS Choices)
Link opens in new window https://tinyurl.com/yb2wzyut

Rare Disease UK(RDUK) is the national alliance for people in the UK with rare diseases
Link opens in new window www.raredisease.org.uk/


RareShare is a unique social forum, building communities for patients, families, and healthcare professionals affected by rare disorders.
Link opens in new window www.rareshare.org

 

 Living with a condition (The Brain Charity)

News and Events  
Our resources

The library at The Brain Charity has a range of resources on Tuberous Sclerosis and on a wide range of disability-related issues.

Turbo & Scott

This includes copies of Turbo & Scott, a graphic novel aimed at teenagers.